Brothers Diagnosed with Rare Dementia Face Shortened Life Expectancy, Determined to Raise Awareness

 

Jordan and Cian Adams, two brothers from Worcestershire, UK, have been given a heartbreaking diagnosis that could drastically cut their lives short. Aged 28 and 23, respectively, both siblings suffer from Frontotemporal Dementia (FTD), a rare neurological condition that damages the front part of the brain. This disease typically affects individuals under the age of 65, and those diagnosed often lose their lives within ten years of showing symptoms, as no cure exists.

The brothers tragically inherited FTD from their mother, Geraldine, who passed away from the same condition in 2016 at the age of 52. Before her death, Geraldine lost the ability to speak or move independently and no longer recognized her children.

Despite this grim outlook, Jordan and Cian have vowed to make the most of their lives. "Our lives may be shorter than most, but this has made us both determined to make the most of the time we have," Jordan shared in an interview with MailPlus. He added that they are focused on raising awareness and funds to fight this devastating disease.

Cian echoed his brother's sentiment, saying, "A million times over, I wish this had never, ever happened... but it has given us meaning and a chance to make a difference in the world."

The brothers have channeled their determination into action, embarking on a mission to raise funds for Alzheimer's Research UK by running across the UK. So far, they have raised £150,000 and have set an ambitious goal of reaching £1 million. "There’s a really good reason why we’re doing this, and that’s what keeps us going," Cian said.

Their journey is also deeply personal, done in memory of their mother. Cian fondly recalled, "She used to love her R&B music... She’d quite frequently have it blasting in the car when we’d be on the way to school."

Fortunately, their older sister, Kennedy, did not inherit the condition, but the brothers acknowledge the emotional toll it has taken on her, knowing she will eventually lose them to the same illness that claimed their mother.

Jordan and Cian's resilience and commitment to making a difference is a powerful testament to their strength in the face of a devastating diagnosis. Their efforts continue to inspire many as they push forward with their campaign for awareness and research.